Sunday, August 24, 2014

Church in the hospital & Bridger Update



We have felt so many blessings lately. There is no question in our minds that there is a Heavenly Father who loves us, who watches out for us and who answers prayers. We know there are many of you praying and fasting for our family. We know this by the comfort we feel on a daily basis. Thank you for your prayers!!!  Yes there are frustrating moments but they are few compared to the moments of joy, bonding, and growth. We have been lifted and carried through this by the angels working for God.

 Today being Sunday we were able to attend our church at the hospital. It is awesome. Jordan decided this will be his "home ward." It lasts only 30 minutes! You can wear whatever you want! And the spiritual moments are strong.
Plus

-Today sweet 3 yr old was dancing next to the podium during the musical number.
- The life flight team quietly snuck out while they were passing the sacrament to go pick up another kid.
- You can wear your Pajamas.
-People of other faiths join to worship- the Mennonites have been there the last couple weeks.
-The sweet spirit of the kids who come in with IV poles, wheelchairs and all sorts of disabilities.
-Getting to partake of the sacrament and remember that Christ understands all of it.
-Musical numbers are the best.

Now for a Bridger Update
He is doing awesome!!!! We are thrilled about his progress even if it is in a diaper. Yippie for the many poopy diapers he has started having. His bowels are waking ups and making sounds. Today he cracked a smile when he tooted in his sleep. Jordan smile was even bigger.
This week  I got to hold him skin to skin. I was supposed to try Non-nutritious Breast Feeding (pump all the milk out but then let him try the act of nursing to help him learn to do it for later). I may have accidentally snuck him some milk and of course he loved it. His doctor no longer wants us to try Non-nutritious Breast Feeding. They are still waiting to really introduce any food to him but it should be soon!!! He needs very little oxygen support, in fact, he spent 6 hours the other day with absolutely no oxygen support. He is also doing very well as they wean him off his pain meds.

Bridger's Steps of Progression
Intestines put in Silo (day 1)
Closure Surgery (day 12)
Off the ventilators (day 21)
Held by mom and dad (day 21)
Weened off sedation (day 23)
Weening his pain meds
Off paid meds
Weening his oxygen support
Off oxygen support
Hear bowl sounds (tummy grumbles)
Poop
Introduce food
*Tolerate food (digest food)
Nursing
Take our baby home

*We are praying that his digestive system will work properly and that he won't need any further surgeries.

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